Prostate cancer advice please- newly diagnosed

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chorleyhere
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Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Tue Sep 17, 2019 10:21 pm

Following the test day in June at Turf Moor, I have been diagnosed with Prostate Cancer and am awaiting either Prostatectomy or Radiotherapy.

I know both have pros and cons with differing side effects. There have been posts in the past with stories of fellow Clarets who have undergone treatment.

At the moment I am feeling a bit unsure about my choice of treatment and would welcome thoughts from fellow forum members if they can help at all.

I am so glad that I attended the test day as I was unaware of any symptoms, so thanks to Barry Kilby and the charity for organising the day.

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Re: Prostate cancer advice please- newly diagnosed

Post by jdrobbo » Tue Sep 17, 2019 10:24 pm

I am unable to advise you on this but can I be the first to offer you my very best wishes on your journey ahead.

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Re: Prostate cancer advice please- newly diagnosed

Post by WadingInDeeper » Tue Sep 17, 2019 10:44 pm

chorleyhere wrote:Following the test day in June at Turf Moor, I have been diagnosed with Prostate Cancer and am awaiting either Prostatectomy or Radiotherapy.

I know both have pros and cons with differing side effects. There have been posts in the past with stories of fellow Clarets who have undergone treatment.

At the moment I am feeling a bit unsure about my choice of treatment and would welcome thoughts from fellow forum members if they can help at all.

I am so glad that I attended the test day as I was unaware of any symptoms, so thanks to Barry Kilby and the charity for organising the day.
My dad went for radiotherapy a long time ago, at least 12 years, probably more. Other than frequency and urgency of going to the toilet he never seemed to have any significant side effects.

bfcjg
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Re: Prostate cancer advice please- newly diagnosed

Post by bfcjg » Tue Sep 17, 2019 10:50 pm

Sorry to hear your news. A guy at work was diagnosed 2 years ago and took on board all the advice the consultant gave. He opted for radiotherapy despite having quite an aggressive tumour as being a very fit relatively young guy low fifties he wanted to be as normal as possible. He was quite scared and tired however his tumour has stabilised and he is in remission. He has regular check ups plus a regular injection and is optimistic. The research and treatment for prostate cancer is amazing and his consultant is really positive about a new treatment that is being rolled out that targets and freezes the cells.
The key all the way through his treatment is be positive look after your body and soak up advice. Good luck.

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Re: Prostate cancer advice please- newly diagnosed

Post by ALP » Tue Sep 17, 2019 10:54 pm

A mate of mine is having injections and radio, he too couldn't make his mind up at first but he sought support and advice and made this choice. Thus far all is going well and the injections are working, I think he has two more and then moves onto the radio.

All the very best on your journey, and you'll make the right choice for you and you'll come through this a stronger person.

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Re: Prostate cancer advice please- newly diagnosed

Post by COBBLE » Tue Sep 17, 2019 10:56 pm

Best wishes. Not found the courage to have the test yet.

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Re: Prostate cancer advice please- newly diagnosed

Post by claret59 » Tue Sep 17, 2019 11:06 pm

I too was diagnosed with this type of cancer. I was assured that both types of treatment had an equal chance of success so I chose radio therapy as I did not fancy surgery and having to wear a 'bag' for a couple of weeks.
I have since learnt that even surgery is not always of itself sufficient and needs to be followed up with radio therapy. I think too ,BUT NOT CERTAIN, that if radio therapy is opted for but does not result in a cure then surgery is not an option at that time.

As for side effects of radio therapy which in my case was successful ( but still being monitored ) the radio therapy can damage other parts of the body in the proximity of the prostate ( viz good cells being damaged as well as the bad ones,) so you need to be prepared for that. For example in my case I have not had a single complete nights sleep since the therapy ended, over a year ago, because I have to go to urinate throughout the night on several occasions, sometimes with as little as 30 mins between one time and the next. It will no doubt vary from person to person.

There are other side effects because you are injected with hormones which are alien to your body and can give you female characteristics! Like hot flushes, enlarged breasts and a desire to wear women's dresses ( only joking with the last one!)

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Re: Prostate cancer advice please- newly diagnosed

Post by Rick_Muller » Tue Sep 17, 2019 11:21 pm

Not experienced it myself, but my dad was diagnosed about 4 years ago and he was told that they wouldn’t consider surgery due to his age (78 at that time), he opted to just accept it and he’s still around albeit with Parkinson’s disease and a whole host of other issues.

Good luck with whatever you decide, all the best

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Re: Prostate cancer advice please- newly diagnosed

Post by IanMcL » Wed Sep 18, 2019 1:46 am

June test and still waiting to get treatment?
What's the point of an early diagnosis, if they do not immediately take action?

I wish you the very best and a full recovery.

A friend took some tablets first, which minimised it and then Radiotherapy. He is ok now.

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Re: Prostate cancer advice please- newly diagnosed

Post by Targetman » Wed Sep 18, 2019 4:05 am

IanMcL wrote:June test and still waiting to get treatment?
What's the point of an early diagnosis, if they do not immediately take action?

I wish you the very best and a full recovery.

A friend took some tablets first, which minimised it and then Radiotherapy. He is ok now.
They do take immediate action! There are tests, scans and a biopsy to go through when you are firstly suspected of prostate cancer.

If cancer is confirmed then they need to know how aggressive it is, if it is still enclosed in the prostate gland or if it has emerged from there to other parts of the body.

Discussions need to take place between yourself and consultants regarding the type of treatment you will require depending on your test results.

After all these things have taken place the options open to you will be given and then you have to make a big decision regarding the type of treatment you prefer.

All this takes time but fortunately this type of cancer is not fast moving.

I speak from experience, I was diagnosed 3 years ago after going to one of the screening sessions at Turf Moor. By coincidence I go to see the consultant today for my 6 monthly check up, they will see me for 5 years after my surgery after which time I hope to be cancer free again.

At the moment everything has gone well, the PSA reading in my blood is almost undetectable.

But its a huge decision to have to make between surgery or radiotherapy, definitely life changing, although some people aren't offered this choice due to either how aggressive the cancer has become or how old they are.

I found it helped very much when I spoke to someone who had gone through this before I actually made my decision. If the original poster would like to know more about my personal experiences of this I would certainly be willing to talk to them. If you would like to leave some form of contact details I will get in touch, we could even meet before this Saturdays game with Norwich if thats possible.
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Re: Prostate cancer advice please- newly diagnosed

Post by Inchy » Wed Sep 18, 2019 6:58 am

Not something I know much about however I wish you all the best with your treatment and hope for a speedy recovery



Strangely as I was reading this an article on sky news regarding new prostate cancer treatment came on the tele.

See link for more info

https://www.mirror.co.uk/lifestyle/heal ... e-20085939" onclick="window.open(this.href);return false;

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Re: Prostate cancer advice please- newly diagnosed

Post by turfytopper » Wed Sep 18, 2019 7:42 am

I was diagnosed in. 2015 aged 55. I had three tumours and a Gleason of 4 plus 3 (7). The most difficult time was deciding on my treatment option.
But I took the decision to go for the radical prostatectomy. If you'd like to chat, call me on 07882920591 after 9am

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Re: Prostate cancer advice please- newly diagnosed

Post by beddie » Wed Sep 18, 2019 8:11 am

chorleyhere. Can I just send my support to you. I'm unable to offer advice but I'm sure with help you'll make the right decision.
The very best of luck.

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Re: Prostate cancer advice please- newly diagnosed

Post by Darnhill Claret » Wed Sep 18, 2019 8:36 am

Cobble, you must have the test asap as it is win-win. If you get the all clear it’s a massive relief and if something is detected you can start the treatment sooner than you would have, so increasing you chances of a positive result. Good luck to all who have any form of cancer related illness.

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Re: Prostate cancer advice please- newly diagnosed

Post by Burtonwoodclaret » Wed Sep 18, 2019 8:54 am

I heard a very informative talk on Prostate Cancer at our Rotary Club last night. The general advice was have the tests , both the blood test ( which is not infallible) and a RDE ( finger up the bum) test which is not really uncomfortable and only takes about 30 seconds.
An advice line was passed on 08000748383. You can also chat to a specialist nurse online at prostatecanceruk.org/get-support.

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Re: Prostate cancer advice please- newly diagnosed

Post by ClaretTony » Wed Sep 18, 2019 9:06 am

All the very best to you chorleyhere and I'd certainly take in as much advice as you can. One poster on here has already offered it and I'd speak to him (turfytopper) while I'd also get professional advice.
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Re: Prostate cancer advice please- newly diagnosed

Post by IanMcL » Wed Sep 18, 2019 9:11 am

Thank you Targetman.

Excellent response and post.

Ian

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Re: Prostate cancer advice please- newly diagnosed

Post by SalisburyClaret » Wed Sep 18, 2019 9:48 am

I was diagnosed last year and opted for a prostatectomy- mainly because of the probability/ possibility of having a course of treatment and then it being all over. I was at level 7. So far it’s gone well with 9 months of PSA tests with undetectable levels. My operation was done robotically - everyone I spoke to heavily recommended this. It was not unduly painful and recovery was fast. In fact the worse thing was having the stent inside for 2 months.
So I would recommend a surgical solution as it worked for me. Whatever route you choose I wish you all the best.
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Re: Prostate cancer advice please- newly diagnosed

Post by SalouClaret » Wed Sep 18, 2019 10:30 am

chorleyhere wrote:Following the test day in June at Turf Moor, I have been diagnosed with Prostate Cancer and am awaiting either Prostatectomy or Radiotherapy.

I know both have pros and cons with differing side effects. There have been posts in the past with stories of fellow Clarets who have undergone treatment.

At the moment I am feeling a bit unsure about my choice of treatment and would welcome thoughts from fellow forum members if they can help at all.

I am so glad that I attended the test day as I was unaware of any symptoms, so thanks to Barry Kilby and the charity for organising the day.

My brother is a radiographer (well he was, I'm not sure if he still is, haven't spoken to him for years but that's another story) and he always said he would opt for radiotherapy if he found himself in your situation. Obviously he is more than likely biased, but he seemed to know what he was talking about.

I wish you all the best. Cancer is a ****

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Re: Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Wed Sep 18, 2019 8:31 pm

Many, thanks, for all the responses and best wishes. I know it was awhile before coming to this decision phase but obviously it included a second confirmation blood test and then a quick referral to a consultant urologist with an MRI the day after, which was a very good service from the NHS. I chose to have a template biopsy as it had the best chance of locating any cancerous cells. In my case it did. I got the results back quickly and have seen the consultant radiotherapist and have an appointment to see the surgeon.
All the responses have been helpful in adding to my thoughts on the choice I have to make. Cobble please do get a test as the earlier the better is everyones' advice.
Thanks too, to Targetman and turfytopper for offers of help I'll be in touch to have a chat please, I'm on 07722455949

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Re: Prostate cancer advice please- newly diagnosed

Post by ewanrob » Wed Sep 18, 2019 9:57 pm

First of all Chorleyhere, so sorry to hear your news. All I can say, is that whatever treatment you decide on, you will get the absolute best care and support. Good luck on your treatment journey, and at all times...chin up. UTC

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Re: Prostate cancer advice please- newly diagnosed

Post by mkmel » Wed Sep 18, 2019 10:24 pm

I just want to say that there is light at the end of the tunnel
I was diagnosed with prostate cancer in 2011 and was on watch and observe over the years with no surgery or radiotherapy
Luckily I was diagnosed at the early stages of prostate cancer and was put on watch and observe and had many PSA blood tests
I also had 3 non general anaesthetic prostate biopsies which I found to be mind blowing and not in a nice way
Oh and I was 60 at the time and was told that the good news was that at my age I would probably die of something else before the cancer got me
And then in about October time 2018 I had what is called a transperenial so 4th biopsy under general anaesthetic where they took 47 samples
And they all came back as negative so I got the all clear
I then had another PSA blood test in about July 2019 and that was fine and when I saw my Urologist in August this year he was so pleased with the results that he discharged me
I just have to off my own back have a PSA blood test in 12 months time and decide myself if it's a good result or not
So yes there can be light at the end of the tunnel
Like someone said it is very important that you are Positive
I am very Positive about everything in my life and I am certain that helped me
And Cobble please get yourself checked out......You owe it to yourself and you owe it to your family
Just do it
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Re: Prostate cancer advice please- newly diagnosed

Post by ewanrob » Wed Sep 18, 2019 10:29 pm

Totally agree with the Positivity thing mkmel, it's what got me thru it....+ the love of my family and support from my friends. Must also add, that my MacMillan team were just magnificent....absolute class.
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Re: Prostate cancer advice please- newly diagnosed

Post by Darnhill Claret » Thu Sep 19, 2019 8:30 am

Cobble just think, what advice would you give to a loved one on this subject. All you have to do now is follow your own advice.
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Re: Prostate cancer advice please- newly diagnosed

Post by Foshiznik » Thu Sep 19, 2019 1:15 pm

Darnhill Claret wrote:Cobble just think, what advice would you give to a loved one on this subject. All you have to do now is follow your own advice.

I can't add to the discussion, but I wanted to wish you all the best in your treatment and recovery. You don't realise how resilient your own body is until something like this happens. Up the Clarets!

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Re: Prostate cancer advice please- newly diagnosed

Post by ClaretTony » Thu Sep 19, 2019 1:24 pm

COBBLE wrote:Best wishes. Not found the courage to have the test yet.
Do it. It gives you a few days of concern awaiting the results and if the news isn’t good then it gives you the opportunity to deal with it.

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Re: Prostate cancer advice please- newly diagnosed

Post by turfytopper » Thu Sep 19, 2019 7:46 pm

COBBLE wrote:Best wishes. Not found the courage to have the test yet.
Prostate cancer only kills those that didn't get detected early enough. If it's contained (the cancer) within the prostate you can be cured with treatment.
Everyman has a PSA score...if you are in your mid 50's or later just have the simple blood test...the result doesn't tell you you have cancer...but if it is abnormal then you'll be checked further.

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Re: Prostate cancer advice please- newly diagnosed

Post by claretfern » Thu Sep 19, 2019 8:53 pm

Some terrific advice here. These types of posts on UTC are the best ones.
Best wishes to all concerned.

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Re: Prostate cancer advice please- newly diagnosed

Post by icu81b4 » Thu Sep 19, 2019 9:24 pm

Best wishes chorleyhere, don't dwell on the now, instead look forward with hope and take all the positives with you.

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Re: Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Thu Sep 19, 2019 11:23 pm

I've been in touch with Targetman and turfytopper and both have had a positive message to relate and given me some good pointers to consider. Much better to talk to someone with personal knowledge than just relying on printed sheets. The professionals I talked to have also been very helpful too.
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Re: Prostate cancer advice please- newly diagnosed

Post by Clarets4me » Fri Sep 20, 2019 1:22 am

COBBLE wrote:Best wishes. Not found the courage to have the test yet.
You need to summon it up, my friend, as someone said earlier, what would you advise a friend to do ?

Get it booked tomorrow ...

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Re: Prostate cancer advice please- newly diagnosed

Post by Clarets4me » Fri Sep 20, 2019 1:22 am

COBBLE wrote:Best wishes. Not found the courage to have the test yet.
You need to summon it up, my friend, as someone said earlier, what would you advise a friend to do ?

Get it booked tomorrow ...

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Re: Prostate cancer advice please- newly diagnosed

Post by Whatsupdoc » Fri Sep 20, 2019 10:05 am

Excellent thread! I had a robotic prostatectomy 6 years ago. Very straight forward and quick recovery, catheter 2 weeks , back to work 6 weeks. If anybody would like to contact me about the surgery and how to deal with potential after effects please email me nperc@aol.com
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Re: Prostate cancer advice please- newly diagnosed

Post by Sleeping Cat » Fri Sep 20, 2019 10:37 am

Just wanted to wish you good luck with your treatment Chorleyhere. Great to see so many sharing their experiences and advice on this thread.

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Re: Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Sun Sep 22, 2019 8:00 pm

Hi Whatsupdoc I have sent you an email and would welcome your thoughts.

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Re: Prostate cancer advice please- newly diagnosed

Post by The Enclosure » Sun Sep 22, 2019 9:06 pm

I was diagnosed on Friday last with PC. Have started a 4 week course of hormone tablets followed by a hormone injection every 3 months.after the 4 weeks or as soon asiam back in hospital for Transurethral prostatectomy.This involves telescopic removal of the obstructing central part of the prostate with ( electric current)diathermy. Creating a wide channel to allowurine to flow more easily. A Temporary bladder cathetrr is usually inserted after the operation.
Normally thw procedure takes 45 to 60 minutes to complete. The op is usually carried out under a general anaesthetic or spinal where you are numb from the waist down....i have to wear a catheter when i leave hospital tomorrow until the operation.
One other thing is a bone scan done as an out patient to check if the cancer has spread.
I went into hospital last week after suffering severe stomach pain and inability to pass urine except with great difficulty..As soon as the catheter was put in on arrival at a and e the pains were gone but then they found the growth on the prostate...

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Re: Prostate cancer advice please- newly diagnosed

Post by turfytopper » Sun Sep 22, 2019 9:33 pm

Whatsupdoc wrote:Excellent thread! I had a robotic prostatectomy 6 years ago. Very straight forward and quick recovery, catheter 2 weeks , back to work 6 weeks. If anybody would like to contact me about the surgery and how to deal with potential after effects please email me nperc@aol.com
Hi great to hear of your experience and recovery.

Whilst I do not regret my own decision to have had the radical prostatectomy, I must report, that despite me being only 56 and relatively super fit, I had severe urinal incontinence for 2 years and still have issues today over 3.5 years later.
That despite following all the advice on diet, pelvic exercises etc.

That said, life is good and I’d probably make the same decision today.

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Re: Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Mon Sep 23, 2019 12:03 am

All the best to you "' Enclosure" let's hope we make good progress together.
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Re: Prostate cancer advice please- newly diagnosed

Post by FactualFrank » Mon Sep 23, 2019 12:28 am

Good luck with it all.
Last edited by FactualFrank on Sat Oct 12, 2019 2:36 pm, edited 1 time in total.

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Re: Prostate cancer advice please- newly diagnosed

Post by Wile E Coyote » Mon Sep 23, 2019 12:36 am

makes so much of what we scream and rant about on here totally trivial, hope all goes well for those being treated, quite humbling to read .
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Re: Prostate cancer advice please- newly diagnosed

Post by The Enclosure » Mon Sep 23, 2019 4:26 am

chorleyhere wrote:All the best to you "' Enclosure" let's hope we make good progress together.
And the same to you Chorleyhere.I have to say the care and understanding that I have had in Blackburn Royal has been faultless and they have made what is quite a scary thing to be told much more bearable.
Onwards and upwards.
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Re: Prostate cancer advice please- newly diagnosed

Post by The Enclosure » Sat Oct 12, 2019 2:31 pm

Had some great news by letter today from the consultant to say that my bone scan did not show any evidence of the cancer spreading.
Got my transurethal prostatectomy operation in a couple of weeks so be glad when thats behind me..Looks like i am going to miss the Chelsea match but will bring double tins to the following home match.
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Re: Prostate cancer advice please- newly diagnosed

Post by Vino blanco » Sat Oct 12, 2019 2:34 pm

Excellent news, good man, rock on!!
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Re: Prostate cancer advice please- newly diagnosed

Post by beddie » Sat Oct 12, 2019 5:39 pm

That's great news.The specialists are far more advanced than ever today and will get you sorted. Stay positive and look forward to the West Ham game. We're all rooting for you.
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Re: Prostate cancer advice please- newly diagnosed

Post by The Enclosure » Sat Oct 12, 2019 5:43 pm

Thank you Beddie it really is much appreciated believe me..

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Re: Prostate cancer advice please- newly diagnosed

Post by chorleyhere » Sun Oct 13, 2019 12:00 am

Having my RALP (Robotic-Assisted Laparoscopic Radical Prostatectomy) on 24th October all being well. Should be home after about 48 hours and then looking forward to getting back to as normal as possible !!
looks like Enclosure and I will be recuperating about the same time.
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Re: Prostate cancer advice please- newly diagnosed

Post by beddie » Sun Oct 13, 2019 9:13 am

chorleyhere. You'll be fine. Just make sure you take your time with the recuperation. A few weeks later you'll be back to normal. Good luck to you.
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Re: Prostate cancer advice please- newly diagnosed

Post by IanMcL » Mon Oct 14, 2019 12:59 am

Good luck, successful treatment and speedy recovery to you both.
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Re: Prostate cancer advice please- newly diagnosed

Post by The Enclosure » Thu Oct 24, 2019 1:56 am

Am writing this in the elective surgery ward at Burnley General.Had my TURPS operation (Transurethal Prostatectomy for prostate cancer ) this afternoon under a general anaesthetic.Apparently everything went well and providing i can pass water without a catheter later today then I can go home. The operation involves opening up the urethal passage so I can pee without a catheter and taking a biopsy of the tumor to assess its potency I guess. The operation is absolutely nothing to worry about and the care by all the doctors and nurses is first class. I hope your op went well also chorleyhere, I assume you are in Chorley hospital?
Up the Clarets and 3 points on Saturday lads please.
Ps DO NOT forget to take a tin or two for the community kitchen appeal!
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Re: Prostate cancer advice please- newly diagnosed

Post by spadesclaret » Thu Oct 24, 2019 2:24 am

ThelovelyEnclosure, I hope you will be posting from home later today. I also hope that any on-going treatment goes just as well. Good luck!
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