Today I buried my beautiful 10 month old grandson Joey Patrick Bedford. Joey was our first and only Grandchild, born on the hottest day of the year on 24 July 2019. He was a happy baby, cheeky grin with an infectious laugh. My son Jordan and his wife Gina's world came crashing down when their "normal, happy little baby" suddenly became ill towards the end of May and was admitted to Hospital on June 8, he had typical virus symptoms two weeks before. He was admitted to James Cook University Hospital and transferred to Newcastle RVI- ICU. After 9 days despite the hard work of everyone at the Hospital he did not respond to treatment and passed away on 17 June. Jordan and Gina are now telling others to trust their gut instinct when they know something is not right. They took him back to the Doctors five times in a three week period because they knew something was not right, it was on the fifth occasion that he had a seizure at the walk in centre in Redcar. Numerous tests, scans and MRI's revealed that Joey's spleen was enlarged and his brain was swollen. We still do not have any idea as to the cause of death and have been told that it could take up to 6 months for the Coroner's enquiry to be completed. The Neurosurgeon, Neuro Consultant, the infectious diseases team, cancer Consultant and anaesthetist at Newcastle were all involved, they even consulted Hospitals throughout the country and abroad, despite this they could not stop the swelling that ultimately took Joey's precious life. Jordan and Gina wish to make it clear that the NHS staff were amazing throughout. We as a family have decided to become involved in fundraising in Joey's name for a charity to be decided, probably towards research into children's medicine, we are all determined to make a difference to help others.

Our wonderful captain Ben Mee has spoken to Jordan on Instagram with words of comfort, for that I thank him most sincerely especially as Ben is also going through a tough time with his own daughter.

Life will not be the same for any of us. I miss little Joey more than words can say, he was nearly walking and had spoken his first words, "da daa". it was hard enough that we were unable to see him for over three months due to lockdown, however, the satisfaction we have from that though is that his daddy Jordan was able to have that special time with him being off work himself. One of our special photographs is of Joey in his full Burnley kit aged 3 months.

We (Auntie Sophie) have set up a crowd funding page should you wish to contribute and read more about Joey's journey, for that we would all be extremely grateful.

I'm hoping the link I've attached will open but if not perhaps somone would be kind enough to help me with it.

Thank you all so much for reading this.Joe.

https://www.justgiving.com/crowdfunding ... eysjourney

Heartbreaking - thoughts with all your family.

The link works

I am so desperately sorry for your family, that is such an horrendous thing to go through, life is just not fair.

condolenses from gt harwood , a truely tragic story , you sound so strong in these terrible times , good luck to all your family

That’s devastating news. My heart goes out to you and your family Joe. I can’t begin to imagine what you are going through.

Heartbreakimg...so very sorry for your loss.

So awful, I have 3 very young children and I’m the worrying type so I’m always over thinking things. Life’s so precious, god bless him and all the family.

Difficult to know what to say here, beddie.

Keep strong.

Absolutely heartbreaking. Can’t imagine what you and your family are going through.

I have tears in my eyes reading that beddie, my heart goes out to you and both Jordan and Gina. I have no words to offer any comfort but I truly hope you all find peace with this terrible tragedy.

Bless you all x

That is so, so sad beddie. Mrs Vino and I have an eight month old grandson (our first), whom I haven't seen yet through living in Spain and the covid crisis. I have felt guilty about his but your story has brought tears to my eyes. Please be strong for yourself and your family. Love is the answer.

So sad for your loss. My thoughts are with you and your family.

Beddie
As a grandad with a 1 year old Grandson i know how much joy they bring.And as a father who has lost a son i know how incredibly painful that is.My most sincere condolences to all the family. No words can help, .God bless to all the family.

Completely devastating.
So so heartbreaking. Tears shed.
Can't fathom what to say.
Thoughts with you all

lakedistrictclaret wrote: ↑

Wed Jul 01, 2020 9:46 pm

Difficult to know what to say here, beddie.

Keep strong.

I echo this. RIP little man.

Can't even begin to find the words to offer you comfort or solace beddie.
Rest in peace Joey.

So sorry.

Just so heartbreakingly sad, beddie.

I can't think what pain you and your family must be suffering with right now. My thoughts are with you all.

RIP wee man

Absolutely heartbreaking to read. Thoughts very much with you and your loved ones Beddie.

Awful news. My thoughts and prayers are with you all.

Brought tears to my eyes. Not sure what else to say. Life can be so cruel.

Rest in peace little one.

Mr & Mrs Aclaret sending love and prayers to you all. XX So Sorry. Rest In Peace little fella.

Deepest sympathy to yourself and all the family, Beddie.
There are no words of comfort but be family strong and look after each other.
RIP, little Joey

so sorry for you and your family, what a terrible tragedy. hope you all find the strength to deal with this in time.

So sorry to hear this.

Thoughts with all the family.

Devastated for you and your family,. My condolences to you all.

R.I.P. Joey Patrick Bedford.

Cannot fathom being in that position. Awful to read and hear of...

I truly admire your position in trying to raise awareness about this in this time...

My deepest condolences to you all

RIP little Joey x

Had tears in my eyes reading that.

So, so sorry for your loss.

Sleep well young Joey Patrick, rest in peace. X

So sorry to hear this baddie, thoughts are with you and your family at this sad time.

Look after each other.

My deepest condolences to you and all your family. This is so very very sad. I hope you can give each other the strength to get through it. Sending you love and sympathy xx

So sorry to hear this awful news, beddie. My grandson is three months old today. I've seen him just the once - he's down in Devon - but I couldn't imagine losing him.
My best wishes to you and your family.
Please keep us updated regarding the charity/charities you'd like to support.

Big, big love to you and your family.

beddie wrote: ↑

Wed Jul 01, 2020 9:32 pm

Today I buried my beautiful 10 month old grandson Joey Patrick Bedford. Joey was our first and only Grandchild, born on the hottest day of the year on 24 July 2019. He was a happy baby, cheeky grin with an infectious laugh. My son Jordan and his wife Gina's world came crashing down when their "normal, happy little baby" suddenly became ill towards the end of May and was admitted to Hospital on June 8, he had typical virus symptoms two weeks before. He was admitted to James Cook University Hospital and transferred to Newcastle RVI- ICU. After 9 days despite the hard work of everyone at the Hospital he did not respond to treatment and passed away on 17 June. Jordan and Gina are now telling others to trust their gut instinct when they know something is not right. They took him back to the Doctors five times in a three week period because they knew something was not right, it was on the fifth occasion that he had a seizure at the walk in centre in Redcar. Numerous tests, scans and MRI's revealed that Joey's spleen was enlarged and his brain was swollen. We still do not have any idea as to the cause of death and have been told that it could take up to 6 months for the Coroner's enquiry to be completed. The Neurosurgeon, Neuro Consultant, the infectious diseases team, cancer Consultant and anaesthetist at Newcastle were all involved, they even consulted Hospitals throughout the country and abroad, despite this they could not stop the swelling that ultimately took Joey's precious life. Jordan and Gina wish to make it clear that the NHS staff were amazing throughout. We as a family have decided to become involved in fundraising in Joey's name for a charity to be decided, probably towards research into children's medicine, we are all determined to make a difference to help others.

Our wonderful captain Ben Mee has spoken to Jordan with words of comfort, for that I thank him most sincerely especially as Ben is also going through a tough time with his own daughter.

Life will not be the same for any of us. I miss little Joey more than words can say, he was nearly walking and had spoken his first words, "da daa". it was hard enough that we were unable to see him for over three months due to lockdown, however, the satisfaction we have from that though is that his daddy Jordan was able to have that special time with him being off work himself. One of our special photographs is of Joey in his full Burnley kit aged 3 months.

We (Auntie Sophie) have set up a crowd funding page should you wish to contribute and read more about Joey's journey, for that we would all be extremely grateful.

I'm hoping the link I've attached will open but if not perhaps somone would be kind enough to help me with it.

Thank you all so much for reading this.Joe.

https://www.justgiving.com/crowdfunding ... eysjourney

Wow. Where do I start. How brave you are to post. And how much must you all have gone through.

Heartbreaking especially as I have two babies myself either side of joeys age. What a beautiful little boy he is too.

I hope you can all find peace and comfort. And I hope the finds you raise go a long way to helping others and leaving a legacy for joey.

Donated on the link.

Best of luck to you and all of your family beddie.

To other posters. Shows you just never know what others are going through. This is the most extreme and upsetting example imaginable. Be nice to one another.

I am so sorry to hear about your awful news. Exactly a year ago I buried my youngest son, I can imagine the pain you are feeling right now. Life just doesn't seem fair, take strength from all of your family. Sending thoughts and best wishes from my family to yours.

Heartbreaking story, so terribly sad for you all.

No words I can possibly offer to you. Absolutely heartbreaking for you all. For what it's worth my thoughts are with you all at this horrendous time.

Oh dear, my heart goes out to you and your family.
Obviously I have no words to make you feel better, but all I can advise is stay strong stay together don’t close up and keep talking.

A precious life gone and so much sadness to endure , my heart goes out to you Beddie and all the family and friends who will each have very precious memories of this little child. The link to the funding page worked, and I hope that in someway the donations will help someone else to be spared your terrible loss.

I can’t imagine the pain you’re going through. So sorry to hear about your loss.

I’m so very sorry Beddie. My thoughts are with you at this extremely difficult time.

Donation made. It came up as anonymous.

John

Goodness me - I am so sorry beddie for you and your family.

We lost our son coming up eight years ago. The feeling is like no other and not a day goes by in which I don’t glance up at the sky and offer a smile up to him. It helps me and I set myself a daily goal of doing something that would make him proud. I sometimes fail(quite a bit really!) but I know he’s with us as a family in everything we do.

One thing that was huge for me at the time was speaking to someone who’d been through the same- it helped massively. It sounds like our brilliant captain has fulfilled this with your son but if you or your son ever feel the need I’m more than happy to oblige in anyway shape or form.

Take care.

God bless little Joey.

So so sorry beddie.
Be strong for your family.

My son was in Newcastle RVI ITU in January and February for five weeks, fortunately he is OK now and going back to work soon I hope.
The team there were totally professional and amazing people every one of them, and I am sure that they did their very best for your grandson.

It can't get any worse now, your family is at the bottom so the only way is up, be strong and pull your family through.
Great and selfless idea to set up the fund to help others and a fitting tribute to your grandson.

Deepest condolences to you.

simply heartbreaking reading that and can not begin to to imagine the pain and sorrow, sincere condolences

Thoughts are with you and the family during these terrible times

Heartbreakingly sad.

Peace be with the young lad and condolences to the Bedford's

No matter what I say ---words are just not enough to express my sympathy and admiration for everything that you, as a family, have had to deal with.
Love to you all.

Feel very proud of yourself that you had the strength to compose your post beddie, your pain at your sorry loss comes through clear. I think what your are doing to honour your grandson is admirable and touching.
I hope in time you have other grandchildren to help take this pain away. And that of your son and his wife and the rest of your family.

Such a heartbreaking story, so sorry for your loss.

How brave of you to let us share in the lives of your family at this heartbreaking time. Joey is now at rest. The pain lives on. I hope your son Jordan and his wife Gina can find some comfort and solace from the many expressions of sympathy you have received and in the living memorial of Joey's life that you have planned. God Bless.