Parkinson's disease

[Tomcat]

https://petition.parliament.uk/petitions/643411
About blue badges for parking
Hi Clarets, can you please sign this petition
My wife suffers from this debilitating disease.
Hope the link works if not hopefully fellow claret could help me with that.
Thanks Steve

[ClaretTony]

Done. I’ve both a friend and a relative suffering with this disease and happy to support this.

[TheFamilyCat]

If possible, try to a referral for this programme. I did some work in partnership with them and have seen Charlotte at work. What she does is incredible.

https://www.mind2muscle.co.uk/

[beddie]

Happy to sign this. Done.

[Steve1956]

Done.
My brother in law has just been diagnosed with Parkinsons very debilitating disease.

[Midmoorclaret]

Done. A very worthy petition.

[Oldparkwood]

Done. My Dad has this and it would be a massive help if the could do this

[ALP]

Done, this should be a given

[bfcjg]

Done, this is such a common sense measure it should be automatic.

[DAVETHEVICAR]

Done

[Lip]

Signed.

[bfcfan1882]

Done. Saw my grandmother deteriorate from this awful disease.

[Pearcey]

Done. Can’t believe this isn’t already a thing!

[Murger]

Signed.

[Bosscat]

Signed

[ClaretPope]

Done

[aclaretinstevenage]

Signed and shared on FB.

[Lip]

Bump

[Kilson810]

Done, good luck with the campaign!

[mdd2]

Only when mobility is limited should this apply
Horrible illness as it progresses but that progression varies and with all progressive conditions blue badges should be issued when the person becomes disabled with mobility
So sorry can’t support this for all who are suffering from Parkinson’s for reasons stated

[mdd2]

As an addendum my late wife had a blue badge due to severe hip arthritis
When she had a successful replacement she was surprised that she couldn’t have it rescinded not that she used it after the op until it needed renewing

[Cirrus_Minor]

Signed and good luck with this

[LincsWoldsClaret]

Done
Best of luck

[Oldparkwood]

Only when mobility is limited should this apply
Horrible illness as it progresses but that progression varies and with all progressive conditions blue badges should be issued when the person becomes disabled with mobility
So sorry can’t support this for all who are suffering from Parkinson’s for reasons stated

O dear there is always one!

[Jel]

Done and shared to FB

[Rowls]

O dear there is always one!

While I can understand the desires behind this campaign I haven't signed for the same reasons stated by mdd2. As hideous and monstrous a disease as Parkinsons is, it is manageable in the early stages and blue badges should be awarded on a person's ability to get around rather than solely because of a diagnosis.

I wasn't going to bother posting this until you replied to mdd2 in this off hand manner. mdd2 is not alone in thinking as he does and there are possibly many others who think the same but don't want to post their beliefs. I'm not against anybody else supporting this campaign or signing it. I'm nearly always in favour of people taking positive action and standing up for things they believe in, I just don't happen to support this campaign.

All the best and goodnight.

[Tomcat]

Only when mobility is limited should this apply
Horrible illness as it progresses but that progression varies and with all progressive conditions blue badges should be issued when the person becomes disabled with mobility
So sorry can’t support this for all who are suffering from Parkinson’s for reasons stated

Mobility is limited as soon as you are diagnosed with parkinson's.
The diagnosis of parkinson is Partly done by watching people walk.
Parkinson can infect people on a
daily basis be able to walk well one day the next day. They cannot pick their feet up, which leads to falls. That's why it is very expensive for someone with parkinson's disease to get travel insurance because of falls.

[Swizzlestick]

I’m happy for blue badges to be issued for anybody with this awful diagnosis.

Signed.

[BurnleyMickSouth]

Happy to say yes to this petition, without trying to be a drama queen, one day you or someone on here might get this dreded disease, so please add a yes, thank you.

[mdd2]

Mobility is limited as soon as you are diagnosed with parkinson's.
The diagnosis of parkinson is Partly done by watching people walk.
Parkinson can infect people on a
daily basis be able to walk well one day the next day. They cannot pick their feet up, which leads to falls. That's why it is very expensive for someone with parkinson's disease to get travel insurance because of falls.

The festinant gait develops as the disease progresses
I have had good friends who had this and mobility issues were not a problem in the early years of their illness.

[dushanbe]

My mother was diagnosed with Parkinson’s after struggling with and attempting to cover up her symptoms for quite a while. I don’t understand why someone would be against someone with Parkinson’s taking up a blue badge upon diagnosis. It isn’t a zero sum game, where there are only a set number of badges available and if someone gets one, someone else can’t.

As has been pointed out above, the diagnosis can only be confirmed when mobility and physical limitations have already occurred, by the time a blue badge was provided you’d be struggling on some level

[Jakubclaret]

My mother was diagnosed with Parkinson’s after struggling with and attempting to cover up her symptoms for quite a while. I don’t understand why someone would be against someone with Parkinson’s taking up a blue badge upon diagnosis. It isn’t a zero sum game, where there are only a set number of badges available and if someone gets one, someone else can’t.

As has been pointed out above, the diagnosis can only be confirmed when mobility and physical limitations have already occurred, by the time a blue badge was provided you’d be struggling on some level

It's not just that if you started handing out blue badges wily nily for everybody with a disability they'd be no parking spots for the people that could genuinely need 1. I'm not against people having them but it's something that should be assessed upon the ability rather than a blanket diagnosis because it can vary person to person. That applies for every disability when you can function normally but as soon as that changes you should be handed a blue badge without question.

[Foshiznik]

Signed.

Many people who are diagnosed with this disability already have other associated underlying health conditions either connected or not connected to this disease so those in the bracket of not requiring a blue badge and have parkinsons are in the very small minority. There are 100s of blue badge qualifying conditions that most would say are less debilitating that even the mildest parkinsons.

[RHansburyEsq]

I’m not 100% sure how I feel about this. My mum was diagnosed with Parkinson’s 4 years ago and anything which makes her life easier would of course be very welcome. However with her medication it is currently well managed and she is fortunate that it is not progressing super rapidly. Whilst she does have some problems last month she walked 5k along the shore of Coniston without huge difficulty. She wouldn’t dream of using a blue badge until her condition has deteriorated to the extent that she needs it. I think the point is that it affects people at different speeds so maybe a tailored approach based on need is a sensible approach. However I do get that she will one day need a blue badge and maybe not having to go through extra hoops to get hold of one would be one less hassle. Tricky.

[Foshiznik]

I’m not 100% sure how I feel about this. My mum was diagnosed with Parkinson’s 4 years ago and anything which makes her life easier would of course be very welcome. However with her medication it is currently well managed and she is fortunate that it is not progressing super rapidly. Whilst she does have some problems last month she walked 5k along the shore of Coniston without huge difficulty. She wouldn’t dream of using a blue badge until her condition has deteriorated to the extent that she needs it. I think the point is that it affects people at different speeds so maybe a tailored approach based on need is a sensible approach. However I do get that she will one day need a blue badge and maybe not having to go through extra hoops to get hold of one would be one less hassle. Tricky.

To be fair, there is a relatively stringent application process for getting a blue badge. It isn't the case that you just prove you have an eligible condition and then get the badge approved. You need to state the difficulties you have and the reason's why your condition supports the application.

[Inchy]

My much better half is a Parkinson’s Nurse specialist. Whilst PD can be managed in its early stages (for some people) it can also turn very quickly. Other acute illnesses (colds, falls etc) tend to cascade to frailty a lot quicker than it would for someone without such a disease.

I’ve signed it. Yes for some it’s manageable, but by the time it’s not the admin and red tape will inevitably cause delays in issuing the blue badges. This will affect a very very small number of people who have controlled PD. It’s hardly going to cause mass parking issues, but it can make a massive difference to those that need it.

[NewForestClaret]

My wife has early onset PD, diagnosed aged 36. At first it was well managed by the drugs, but all they do is mask symptoms, it continues to progress. Now nearly ten years on, more drugs are required to manage it not so well. Many aspects of life are affected including mobility and this can vary from day to day. Some days a blue badge would help, others not needed, so I will sign the petition.

Also note those with PD get a bum deal all round. Unlike many other chronic conditions, the medications required to help live a normal life are not covered by free prescriptions. Whilst many are diagnosed when pensioners, Parkinson's is increasingly a younger person's disease so there is a slowly increasing long financial burden too.

[mikeS]

Done TOmcat.