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Barry Kilby Prostrate Cancer Appeal

Posted: Thu Jun 21, 2018 6:40 pm
by Leisure
Screenings at the Turf this Saturday from 10am to 1pm. £5 donation.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Jun 21, 2018 7:26 pm
by basil6345789
Do they take a full blood sample or just an end of finger prick? I'm on anticoagulants and have to be careful about bleeding.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Jun 21, 2018 7:29 pm
by karatekid
Do you need an appointment?

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 12:58 pm
by Bfc
I went to the screening this morning and joined around 150 people in the queue.Mr and Mrs Kilby were also there to support the cause. Sonia/Sonya Kilby then offered the waiting crowd tea/coffee and biscuits. While Barry had time to chat to various people including me. Very well done to both of them.
Barry should be recommended for a Honour for his services to Charity, for the work he's done. I will look at the procedure for putting forward his name for such a deserving man
The pitch looked in great condition. I wondered if the Astro turf had been laid upto the edge of the pitch, but wasn't sure. Hopefully it has because over the season, with Refs assistant running up and down it, it take a lot of wear.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 1:51 pm
by karatekid
Just over 400 attended today.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 2:54 pm
by ClaretTony
I spoke to Barry two or three weeks ago. He told me to go down today but I had mine checked not too long ago.

Really good to see two of our directors having set up cancer charities.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 6:38 pm
by Bfc
Thanks for the info kk. I arrived at 10am, when I said 150. Some people were already being given the test, as they started around 9-45. I was told they'd to bring in extra medical supplies, due to the number who turned up. I hope everyone whose been tested today has no cause to have further tests.
I've made enquiries and followed up the suggestion i made in my earlier post.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 7:00 pm
by Spijed
basil6345789 wrote:Do they take a full blood sample or just an end of finger prick? I'm on anticoagulants and have to be careful about bleeding.
I'm currently on Clexane and have blood tests regularly. I'd presume it's the standard size needle for a blood test which shouldn't cause any issues. Alternatively, if you have any issues (or are a bit soft) ask for a butterfly needle when giving a sample.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 23, 2018 7:30 pm
by bobinho
Missed it again...

Next time eh?

Well done BK, and the club.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sun Jun 24, 2018 8:30 am
by Midmoorclaret
bobinho wrote:Missed it again...

Next time eh?

Well done BK, and the club.
I hope for your sake Bob that you make it next time as you never know until it's too late. My father died from prostate cancer at 73 and I vowed then to have a PSA test every year which proved a life saver for me as I was diagnosed with it at 58. I had a complete prostatectomy followed by radiotherapy and have been clear ever since. I'm now 74 and still have a PSA test every 6 months.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sun Jun 24, 2018 8:50 am
by bobinho
Wow. Did actually think about this, but dismissed it as me being a bit fatalist. I will definitely get to the next one, or maybe even ask my doctor for one. My grandfather died from this so it would make sense for me to get checked out.

Cheers for the nudge midmoor, and I’m glad you are in good health.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sun Jun 24, 2018 9:22 am
by ClaretTony
bobinho wrote:Wow. Did actually think about this, but dismissed it as me being a bit fatalist. I will definitely get to the next one, or maybe even ask my doctor for one. My grandfather died from this so it would make sense for me to get checked out.

Cheers for the nudge midmoor, and I’m glad you are in good health.
See your GP

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Mon Jun 25, 2018 9:11 am
by mdd2
Certainly not fatalist but having a high PSA does NOT mean you necessarily have prostate cancer and sadly having a normal PSA does not mean you do not have prostate cancer. PSA should be taken in the context of DRE of the prostate by someone who knows what they are doing and that is not on offer but BK's idea is a start.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Wed Jun 27, 2018 5:30 pm
by Spijed
mdd2 wrote:Certainly not fatalist but having a high PSA does NOT mean you necessarily have prostate cancer and sadly having a normal PSA does not mean you do not have prostate cancer. PSA should be taken in the context of DRE of the prostate by someone who knows what they are doing and that is not on offer but BK's idea is a start.
Was going to add to this earlier. Anyway, it's worth heeding MDD2's advice. Go and speak to your GP as they will be able to advise you whether it's worth taking the test. It's also worth speaking to your doctor about other blood tests. A full blood count is worth it, along with a Liver Function test and renal profile.

More importantly however, get your blood sugar checked to see whether you might be pre-diabetic.

Many illnesses are asymptomatic and are only discovered when it's too late.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 30, 2018 9:47 am
by Loyalclaret
Currently on BBC 1 news

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 30, 2018 9:49 am
by Loyalclaret
Good on him raising the profile of this form of cancer.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 30, 2018 2:23 pm
by not waving
Really good to see Barry on the breakfast news this morning. Speaks extremely passionately.

Two years ago I started to notice a higher frequency of toilet visits. Did nothing until a Sunday lunch where I drank a pint of coke which led to 5 stops during a 12 mile car journey to urinate by the side of the road.

My wife implored me to see a doctor. I did. A routine examination revealed a prostate enlargement. I am 63. PSA blood test arranged within 48 hours. I thought, that's efficient or I'm seriously ill. PSA result within 24 hours revealed higher count than it should be (normal is around 5, mine was 23). Appointment at hospital consultants a week later.

Tests included ultra scan to eliminate any kidney or urinary problem. Flow test using computerised urine flow machine revealed restricted flow. Bladder not completely emptying - hence, frequent toilet visits. MRI scan revealed BENIGN enlargement.

Benign enlargement is very common in my age group. Relieved to hear that word although I am on a daily tablet to keep things at bay and I have regular PSA blood tests. The last one showed a reduction to 17 from the previous test.

Am I free of cancer...for now. Will I get prostate cancer...who knows.

One thing I do know. I took the typical male view that the problem would 'go away'. I had no other symptoms (no pain, no blood in urine etc.) so assumed there was nothing wrong. It took that embarrassing car journey and the rightful intervention by my family to finally get me to do something. I eventually did what I knew I had to do and the issues are now managed.

I now know that the outcome could have been a lot worse.

If only one person bothers reading this and decides to have a test then it was worth it. For all those who have taken that step - good for you. And for your family.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sat Jun 30, 2018 2:26 pm
by ClaretAndJew
Very revealing stuff there notwaving and glad it isn't the C word.

There is still a long way to go to get men to see doctors but a lot of good is being done and this screening by BK is fantastic.

I want a mental health intervention to take place, in a similar vein to this.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sun Jul 01, 2018 8:38 am
by Midmoorclaret
Good job you listened to your wife NW and I hope others take note of what you did before it's too late. Best wishes for the future.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Sun Jul 01, 2018 10:07 am
by Targetman
I went to one of the first screenings they had at the Turf just over a couple of years ago. I didn't have any kind of symptoms that might have made me think there was anything wrong, I went because I felt that Barry Kilby was going to a lot of trouble setting all of this up and I wanted to support his cause.

I didn't really know what to expect when I went but it was all so simple, they took a little bit of blood from my arm and I filled in a form with my contact details.

Around a week to 10 days later I received a letter from them saying that my PSA reading was higher than it should be for a bloke of my age, and that I should make an appointment to see my GP.
My GP then had further blood tests done and then told me he was treating it as suspected prostate cancer.
It was a shock for me, I had no symptoms of any kind.
It's not something you think will ever happen to yourself.

For the next few weeks I was travelling constantly between my GP, Burnley General and Blackburn Royal.
Three months later I had my prostate gland removed, major surgery, 5 hour operation, 3 months recovery time before I could go back to work.

This was 2 years ago. I go back to see the consultant and have further blood tests done every 3 months for 5 years. So far everything has been going well, I appear to be cancer free, the consultant is very happy with my progress and so am I.

I am just very thankful for Barry Kilby and his screening sessions. So if anyone is a bit doubtful about whether they should go to one of these then push that doubt to one side and get yourself there. Chances are that you will be absolutely fine, I was one of the unlucky ones but if I hadn't gone it would have been a lot more serious for me a few years down the line.
My cancer was detected early which gave me a much better chance of long term survival. Don't leave it until its too late!

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Mon Jul 02, 2018 7:11 am
by not waving
Thank you for your comments Targetman and Midmoorclaret. What now surprises me is why more men fail to attend a screening. Perhaps one or more of the following:

* Denial: anything wrong with me will simply go away on its own
* Delusion: if there is anything wrong I can control it - I'm a man, after all
* Fear: I don't need any doctor telling me if anything's wrong
* Ignorance: I don't have any symptoms, perhaps I don't have a prostate

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Mon Jul 02, 2018 7:47 am
by tim_noone
I could fall into the last paragraph.. I would assume I have a prostate. I'm in good health overall at 65.that aside I know nothing about prostate cancer or its symptoms.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Tue Jul 03, 2018 12:47 pm
by karatekid
Just got my result back today .

0.7ng/ml which is a green/normal result. One less thing to worry about.

Thank you Barry Kilby. :)

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Mon Jul 16, 2018 11:33 am
by beddie
Just bringing this to the top again. This post prompted me to get a test via the Doctor, it came back today at 1.48 which I was told is in the "normal" threshold of 0-4 (I'm 64). I intend to make a note to have it done every 12 months. For those who've thought about it but not actually done it ring the Doctors NOW, not tomorrow and make an appointment, it's only a quick blood test.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Wed Dec 07, 2022 10:09 pm
by Rodleydave
Barry K will be at the Royal Dyche 4 until 7 this Friday the 9th, to sign copies of his book, on sale for his prostate fund.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Wed Dec 07, 2022 11:43 pm
by 2 Bee Holed
I had to pick myself up off the floor when I read the thread title.
But obviously this is too sensitive a topic to point out the elephant in the room.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Dec 08, 2022 12:57 pm
by Targetman
2 Bee Holed wrote:
Wed Dec 07, 2022 11:43 pm
I had to pick myself up off the floor when I read the thread title.
But obviously this is too sensitive a topic to point out the elephant in the room.
Can you explain what you mean by that?

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Dec 08, 2022 1:02 pm
by Ightenclaret
He means the misspelling in the title ……

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Dec 08, 2022 3:08 pm
by 2 Bee Holed
Targetman wrote:
Thu Dec 08, 2022 12:57 pm
Can you explain what you mean by that?
As ightenclatet correctly deduces I was pointing out the differenc in meaning between prostrate and prostate.

Re: Barry Kilby Prostrate Cancer Appeal

Posted: Thu Dec 08, 2022 4:12 pm
by Targetman
Ightenclaret wrote:
Thu Dec 08, 2022 1:02 pm
He means the misspelling in the title ……
I hadn't noticed!" :D