The dreaded C word.

BedfordsDad · Post by **BedfordsDad** » Fri Jul 22, 2016 8:45 pm

Stay positive and have total faith in your treatment team and you will be well on the way to recovery. With every good wish.

JohnMac · Post by **JohnMac** » Fri Jul 22, 2016 10:03 pm

NMIS, so pleased for you with the progress you are making. Stay positive mate!

Foshiznik · Post by **Foshiznik** » Sat Dec 10, 2016 2:38 pm

Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

HiroshimaClaret · Post by **HiroshimaClaret** » Sat Dec 10, 2016 2:42 pm

Only 3 blood and platelet transfusions???????

Midmoorclaret · Post by **Midmoorclaret** » Sat Dec 10, 2016 2:44 pm

You've certainly gone through it Foshi but well done and look forward to a better 2017 for you and your family. Celebrate Christmas like never before!

HiroshimaClaret · Post by **HiroshimaClaret** » Sat Dec 10, 2016 2:44 pm

Wonderfully heartwarming news on the eve of a game. You have been through hell and have come out on the other side. Darkness followed by a rainbow. Take good care of yourself and enjoy life x

spadesclaret · Post by **spadesclaret** » Sat Dec 10, 2016 2:44 pm

I am so pleased for you! Well done!
I knew you could do it.

hampsteadclaret · Post by **hampsteadclaret** » Sat Dec 10, 2016 3:07 pm

Best wishes to you.
That is a lot to put up with.
May your recovery continue..

minnieclaret · Post by **minnieclaret** » Sat Dec 10, 2016 4:03 pm

Brilliant news. Congrats, Foshiznik.

Paul Waine · Post by **Paul Waine** » Sat Dec 10, 2016 5:15 pm

Foshiznik wrote:Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

Hi fellow northern man in the south, that's great news. Very pleased for you. That's a long list of treatments. Very well done.

I also got good news from cardio consultant this week, 9 months after heart attack. Told I don't need intervention (stent) on second coronary artery, recovering well, can now "live life as normal" - of course, I'm keeping taking the meds. Planning to build up strength for skiing next winter ((2017/18).

JohnMac · Post by **JohnMac** » Sat Dec 10, 2016 5:32 pm

So pleased for you NMIS.

Kept kicking and fighting and beat that ******* of a disease, well done!

IndigoLake · Post by **IndigoLake** » Sat Dec 10, 2016 5:48 pm

Fantastic news, thanks for the update. Here's to a much improved 2017

Spijed · Post by **Spijed** » Sat Dec 10, 2016 6:20 pm

Foshiznik wrote:Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

Brilliant news.

Vegas Claret · Post by **Vegas Claret** » Sat Dec 10, 2016 6:29 pm

battle hard Nik, best wishes from this side of the pond. If it helps any, one of my best mates was in the same position, it was a long and hard road back for him but he is now all clear, working full time - he just ordered himself a top of the range Merc as a gift to himself !

You CAN get through this

Lowbankclaret · Post by **Lowbankclaret** » Sat Dec 10, 2016 6:32 pm

thays very very good news. congratulations.

bfcjg · Post by **bfcjg** » Sat Dec 10, 2016 6:41 pm

I'm a blood donor and will be at the Turf a week on tuesday giving again. Sometimes it's inconvenient however when you read great news like this it makes it worthwhile. I would urge any fellow Claret who can donate to do so it's painless and someday it could be you or a family member who starts a post like this.

Vegas Claret · Post by **Vegas Claret** » Sat Dec 10, 2016 6:43 pm

Vegas Claret wrote:battle hard Nik, best wishes from this side of the pond. If it helps any, one of my best mates was in the same position, it was a long and hard road back for him but he is now all clear, working full time - he just ordered himself a top of the range Merc as a gift to himself !

You CAN get through this

guess who just read the beginning of the thread !

Awesome news Nik, congrats

Spijed · Post by **Spijed** » Sat Dec 10, 2016 9:29 pm

Foshiznik wrote:Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

Hi Foshiznik, after my own illness, I'm into all things medical. I'm just curious how you ended up having blood clots when you needed platelet transfusions and coagulation injections?

ontario claret · Post by **ontario claret** » Sat Dec 10, 2016 9:37 pm

Leukemia is very treatable if they find the right bone marrow match. They can do wonders with science nowadays. Keep the faith.

ontario claret · Post by **ontario claret** » Sat Dec 10, 2016 9:40 pm

Just saw the date on the original posting. I'll double what Vegas said, and I'm sure that everybody else does as well. Great news.

Ambrose · Post by **Ambrose** » Sat Dec 10, 2016 10:51 pm

There's lots of conspiracy theories about drug companies suppressing facts about alternative treatments for cancer because they can't patent natural products, to continue their billion dollar industry. It may be a total load of rubbish but if I was in your position I wouldn't dismiss any ideas.

Rumour has it that anything with B17 is a good idea. Bitter Apricot Kernels are a major source. Cannabis oil is another theory.

I'm not suggesting ignoring your doctors advice but chewing a few Apricot, seeds has got to be worth a try.

Good luck.

FactualFrank · Post by **FactualFrank** » Sun Dec 11, 2016 1:15 am

As someone who is interested in this sort of thing, I feel we are getting closer to the understanding of immunotherapy - basically knowing what our own immune system needs to destroy cancer cells.

I imagine in time, cancer will no longer exist - or if it does, it'll be like contracting something that needs antiobiotics, such as a urine infection. People will get cancer - take a pill and it'll be wiped out within 2 weeks.

Ambrose · Post by **Ambrose** » Sun Dec 11, 2016 10:07 am

I totally agree, ulcers are a good example. Many people had years of pain and discomfort, now many are cured with a pill.

But there are forces stopping that sort of research for cancer and some people who have indicated that such cures are possible seem to disappear quickly. Either bought off (allegedly) or eliminated.

There's many reasons for this but the two main ones are. Firstly the pharmaceutical industry make massive profits from cancer treatments, which would be wiped out overnight. Secondly, in a world where the population is expanding, cancer is an effective cull method. (Wars are also effective but we digress)

https://thetruthaboutcancer.com/apricot ... for-cancer

There is also the possibility that it's all a complete load of rubbish, the bosses at drug companies are all very nice people and government never lie to us.
But if you're suffering from cancer, I think you'd be a fool to dismiss chewing on a few seeds, which may or may not help.

Spijed · Post by **Spijed** » Sun Dec 11, 2016 11:50 am

FactualFrank wrote:As someone who is interested in this sort of thing, I feel we are getting closer to the understanding of immunotherapy - basically knowing what our own immune system needs to destroy cancer cells.

I imagine in time, cancer will no longer exist - or if it does, it'll be like contracting something that needs antiobiotics, such as a urine infection. People will get cancer - take a pill and it'll be wiped out within 2 weeks.

Unfortunately, blood cancer and lung cancer are two different things and can't be cured in the same way. Cancer is just a word that as often used to describe a wide range of totally different illnesses and in a number of cases, cancer cells can be perfectly normal ones, just that you might have too many of them.

beddie · Post by **beddie** » Sun Dec 11, 2016 6:55 pm

Bloody hell, have you been through it or what? It's fantastic news to read that you are now in full remission, here's hoping for a healthy 2017 for you. I hope you have a great Christmas with this brilliant news.

IWOODLOVETT · Post by **IWOODLOVETT** » Mon Dec 12, 2016 12:03 pm

Brilliant NMIS - you've travelled on the same journey as me.
Think of it as I did in Claret terms - you've been to Leyton Orient and won, now you are back promoted to the Premier League, so make the most of it.
Well done

ontario claret · Post by **ontario claret** » Tue Dec 13, 2016 9:26 pm

My maternal grandfather died of blood cancer 10 years before I was born. Luckily, I never got that gene, but I did get my mother's cataract gene and my paternal grandmother's TypeII diabetes gene. These things really are a lottery, sometimes.

HollandsPies · Post by **HollandsPies** » Tue Dec 13, 2016 9:38 pm

Best wishes NMIS and get well soon. HP

evensteadiereddie · Post by **evensteadiereddie** » Tue Dec 13, 2016 9:43 pm

Superb stuff, NMIS. Delighted for you and your family. Well played, lad !

yorkshireclaret · Post by **yorkshireclaret** » Tue Dec 13, 2016 10:29 pm

Well done mate, it's not the dreaded C anymore but just another illness, I am 9 years in remission from Hodgkins Lymphoma, the experience you go through is life changing. You will enjoy this Christmas like no other.

UTC

Foshiznik · Post by **Foshiznik** » Sun Dec 18, 2016 11:52 pm

Spijed wrote:Hi Foshiznik, after my own illness, I'm into all things medical. I'm just curious how you ended up having blood clots when you needed platelet transfusions and coagulation injections?

Hi Spijed. It started as a DVT and I was on anticoagulant tablets about this time last year until diagnosis in march. When it became PE I went to the gp who rushed me to A+E. I was put on injections (Dalteparin 25000) as the tablets (Rivaroxaban) weren't compatible with my anti-cancer tablets.

I think the reason for continuing (they ended at the end of all my chemo treatment) was to avoid the risk of complications from clots or blood infection, that with my extremely weak immune system would probably have meant the worst.

Foshiznik · Post by **Foshiznik** » Sun Dec 18, 2016 11:58 pm

Ambrose wrote:There's lots of conspiracy theories about drug companies suppressing facts about alternative treatments for cancer because they can't patent natural products, to continue their billion dollar industry. It may be a total load of rubbish but if I was in your position I wouldn't dismiss any ideas.

Rumour has it that anything with B17 is a good idea. Bitter Apricot Kernels are a major source. Cannabis oil is another theory.

I'm not suggesting ignoring your doctors advice but chewing a few Apricot, seeds has got to be worth a try.

Good luck.

For example when I was first diagnosed my success chance was 85%, but only in 2007 when the trials for the drug/chemo combo was in its prime, the chances were 50/50. In 1997 there was scarily a 0% chance of survival. I always used to complain about how cancer research never seemed close to a cure even with all of the money ploughed into it. However, as Spijed says every cancer is very different. It's just the luck of the draw which one you get. I was one of the lucky ones who, even though I had a rare form of leukaemia, had a type that had a better outcome. Some cancers are still a 0% chance of survival and I dread to imagine the pain of hearing that when told of diagnosis, seeing how hard it was to hear mine, even with a positive treatment plan.

FactualFrank · Post by **FactualFrank** » Sun Dec 18, 2016 11:58 pm

Foshiznik, I've not experienced it myself (although with my luck and odds I probably will in the future), but glad you're still here. However, I have been ill to the point of being in IC and the doctors not having a bloody clue what was wrong with me. I've also been on Chemo for the immuo supressive purpose so know how it feels... being sick etc. I bet it makes you a more laid back person in the future as you're basically appreciating every day now. Being ill can be an advantage in that respect, as most people will wake up and just take it for granted.

Have a great Christmas pal.

Fretters · Post by **Fretters** » Mon Dec 19, 2016 12:49 pm

Foshiznik wrote:Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

Great news. I started a thread a few weeks ago asking how you were doing (had to refer to you as NMIS as I couldn't remember your new username, sorry!) and was a little concerned when nobody replied (I knew you'd probably just not seen it but didn't want to keep bumping it just in case) so I'm delighted to read this! Fantastic news, have a great Christmas

superdimitri · Post by **superdimitri** » Mon Dec 19, 2016 4:11 pm

Really sorry to hear the bad news. Like has already been said, it is beatable and you can do it. Keep believing. If Burnley can stay in the premier league then there's no doubt you can see the back of this!

Best wishes

claretdom · Post by **claretdom** » Mon Dec 19, 2016 4:15 pm

Foshiznik wrote:Long time no speak, but you all deserve an update.

After 272 days since my diagnosis, 3 blood and platelet transfusions, 278 hours on an IV, 107 blood tests, 44 nights in hospital, a collapsed lung, bouts of fungal and viral pneumonia, sepsis, Swine flu, Multiple PE, 4 days in Intensive Care, 1617 anti cancer tablets, 488 coagulant injections, a bloodclot in my jugular, and a DVT... I am please to announce that I am officially Cancer free and in full remission!!!!

Thank you to everyone who supported me over the last 9 months and sent well wishes, etc. It was really humbling! Let's hope 2017 is a little better!

Well done NMIS

Spijed · Post by **Spijed** » Mon Dec 19, 2016 9:16 pm

Foshiznik wrote:Hi Spijed. It started as a DVT and I was on anticoagulant tablets about this time last year until diagnosis in march. When it became PE I went to the gp who rushed me to A+E. I was put on injections (Dalteparin 25000) as the tablets (Rivaroxaban) weren't compatible with my anti-cancer tablets.

I think the reason for continuing (they ended at the end of all my chemo treatment) was to avoid the risk of complications from clots or blood infection, that with my extremely weak immune system would probably have meant the worst.

I can't be put on Rivaroxaban because of the possibility of a gastro bleed as I have Portal Hypertension (Non-cirrhotic). Until they invent an antidote for it I'm stuck on Warfarin indefinitely. I take a chemotherapy drug called Hydroxycarbamide (Cytotoxic) which kills my cells and lowers my immune system as well. But as I'm at a very high risk of getting clots without medication it's the lesser of two evils as it were.

Spijed · Post by **Spijed** » Fri Oct 27, 2017 8:52 am

I had a Venesection yesterday, (removing a pint of blood) as my hemoglobin count was too high.

Took them two attempts to get the blood out

Has anyone else had a similar procedure? Obviously the same as blood donation except the blood is incinerated at the end.

FulledgeClaret · Post by **FulledgeClaret** » Fri Oct 27, 2017 9:02 am

Wishing you the best possible outcome, I have had relatives and friends hit with the C word some are still with us others sadly not but the one thing I will say is Stay positive and always look forward to the day you beat it.

Chobulous · Post by **Chobulous** » Fri Oct 27, 2017 9:20 am

I was diagnosed with bladder cancer in 2001 and have had to undergo 2 TURB procedures and 3 diathermies. Almost exactly 2 years ago I was finally discharged from the urology clinic. Best day of my life.

Spijed · Post by **Spijed** » Fri Oct 27, 2017 9:21 am

FulledgeClaret wrote:Wishing you the best possible outcome, I have had relatives and friends hit with the C word some are still with us others sadly not but the one thing I will say is Stay positive and always look forward to the day you beat it.

Thanks.

Mine isn't cancer in the normal sense, more of a blood disorder. It's listed as a cancer (Myeloproliferative Neoplasm) but I produce millions more blood cells than I should do. This can lead to blood clots, but is controlled by drugs. Unfortunately, like many blood cancers/diseases and disorders there isn't a cure as such, but there are ways to keep them under control. And fortunately for me life expectancy is pretty much normal.